用因果模型分析医疗记录中的偏见,小改动提升患者叙述可信度
See Me, Believe Me: Causality, Intersectionality, and Interventions Improving the Appearance of Patients
- 基于年龄、性别、种族构建因果模型,识别导致患者证词被轻视的根源
- 针对性编辑医生笔记后,人类专家更倾向将责任归于外部因素而非患者
- 适合关注医疗公平、临床记录优化的研究者与实践者
在医疗记录中,患者常遭遇证言不公,其文字陈述被质疑真实性。过往研究指出,人口统计特征的交叉性对检测此类不公至关重要。本文利用因果发现方法,分析年龄、性别、种族等边缘化特征如何共同导致特定类型的证言不公表述,构建出关联这些特征与患者现实被削弱方式的结构因果模型(SCM)。随后,基于该模型进行精准编辑医生笔记,对比以大模型进行的全范围上下文修改。通过人类专家和大模型评估修改效果,发现整体上编辑提升了病情紧迫性与病因的清晰度;对人类专家而言,规则驱动的修改更倾向于将责任从患者转移至客观外部因素。研究结果表明:(1)量化医疗记录中不公来源至关重要;(2)通过有意识的微调可显著改善患者形象感知;(3)需进一步评估此类公正表达对健康结果的影响。
原文摘要 · Abstract (English)
In the context of medical records, patients often experience testimonial injustice, where the textual account undermines the validity of their experiences. Past work has demonstrated that intersectionality of demographic features is crucial to \emph{detect} such injustice. We use causal discovery to study the degree to which certain demographic features tied to marginalization (namely age, gender, and race), together lead to specific types of testimonial injustice terms. This offers us an insightful Structural Causal Model (SCM) relating those demographic features to the different ways a patients' reality may be undermined. We then move toward \emph{addressing} such injustice, by very selectively (based on insights from the SCM) editing physicians' notes. For comparison, we contrast these rule-based edits with blanket context-based modifications using an LLM. We assess the impact of these changes on the perception of patients' experiences, using human experts and an LLM. We find that edits, in general, enhance clarity regarding the urgency and causes of patients' conditions. Additionally, for human experts, rule-based modifications show a tendency to shift blame away from patients, and toward more objective external factors. These findings (1) underscore the importance of quantifying sources of injustice in how patients' testimonies are recorded, (2) reveal that making minimal intentional changes accordingly can effect improved patient perception, and (3) call for larger efforts to assess health outcomes under such more just representation.
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