研究阿尔茨海默病照护者心理负担演变，提出分阶段支持方案
Balancing Caregiving and Self-Care: Exploring Mental Health Needs of Alzheimer's and Dementia Caregivers
- 通过25名照护者访谈，梳理心理压力随时间演变的三个阶段
- 发现现有技术支持缺乏个性化与动态适应性，难以持续满足需求
- 适合关注老年照护、人机交互与心理健康干预的研究者
阿尔茨海默病及相关痴呆症（AD/ADRD）是进行性神经退行性疾病，损害记忆、思维和功能。家庭照护者因长期照护责任面临显著心理健康挑战。然而，现有支持体系常忽视其心理福祉需求的动态变化。本研究通过半结构化访谈，对25名AD/ADRD照护者进行调查，识别心理问题的关键成因与影响，构建了照护旅程中三个不同阶段的心理健康演变时间图谱。参与者还分享了对现有心理健康技术的改进建议，强调需开发可访问、可扩展且能随需求变化而动态调整的个性化解决方案。研究结果为设计分阶段、动态响应的综合干预措施提供了基础，有助于全面改善照护者心理健康，进而惠及照护对象。
原文摘要 · Abstract (English)
Alzheimer's Disease and Related Dementias (AD/ADRD) are progressive neurodegenerative conditions that impair memory, thought processes, and functioning. Family caregivers of individuals with AD/ADRD face significant mental health challenges due to long-term caregiving responsibilities. Yet, current support systems often overlook the evolving nature of their mental wellbeing needs. Our study examines caregivers' mental wellbeing concerns, focusing on the practices they adopt to manage the burden of caregiving and the technologies they use for support. Through semi-structured interviews with 25 family caregivers of individuals with AD/ADRD, we identified the key causes and effects of mental health challenges, and developed a temporal mapping of how caregivers' mental wellbeing evolves across three distinct stages of the caregiving journey. Additionally, our participants shared insights into improvements for existing mental health technologies, emphasizing the need for accessible, scalable, and personalized solutions that adapt to caregivers' changing needs over time. These findings offer a foundation for designing dynamic, stage-sensitive interventions that holistically support caregivers' mental wellbeing, benefiting both caregivers and care recipients.
Thank you to arXiv for use of its open access interoperability. PaperDance 不是 arXiv 官方产品；中文卡片由大模型生成，请以原文为准。